Today was the day that we drove an extra day and 500 extra miles ....to visit the University of Alabama at Birmingham to meet Dr. Bruce Korf. It was an honor to have an appt with him to introduce him to Kelly. We wanted to leave no stone unturned as we accept her diagnosis of neurofibromatosis. It's a difficult fact to have to accept so we wanted to learn as much as we could about it.
Dr. Korf gave us many of the answers to the questions that we had. Ironically he knew Dr. Mislen Bauer who is Kelly's genetist at Miami Children's Hospital. He had a high regard for her and that left us feeling very confident in entrusting her with our daughter's NF care. He also told us the same things that she did.
The trip was well worth it. Insurance probably will not cover the expenses since we went out of network to meet with Dr. Korf but he is one of the best in the country for NF research and knowledge. We didn't care because we needed the answers for our daughter's future. We can't put a price on that.
There are many facts about NF that we have learned in these past few weeks and I will probably start a blog specifically for NF and learning disabilities. I will add a link to it on this site. Perhaps this will take me on a journey that I never thought I would.
On another note, Birmingham is a really beautiful city. I loved it. There are hills and beautiful brick homes. There is slight traffic in the suburbs but nothing can be nearly as bad as Miami! In any case the town is really beautiful and the sites are adorable.